This petition is designed to pressure The Government of the Province of Ontario into providing funding for children suffering from the ultra-rare disease called Maroteaux-Lamy Syndrome (MPS VI). In Canada, there are an estimated 3 children suffering from this disease and approximately 1000 worldwide. Our 2 year old son Isaac was diagnosed in October of 2005. A treatment exists that will reverse and prevent many of the devastating symptoms, but the Ontario Government has refused to pay for the expensive Enzyme Replacement Therapy (cost of $300,000 to $1,000,000 per year). Please sign to support our cause and help our son receive the treatment he so desperately needs.
www.theisaacfoundation.com
MPS VI is a rare, progressive, debilitating, and relentless disease caused by an enzyme deficiency. Our son Isaac was diagnosed with this disease in October of 2005, which prompted us to form our Foundation. The Isaac Foundation's goal is to raise money to support research into MPS VI and assist projects that aim to explore new treatments and possible cures.
