Help raise awareness about AMKD with your advocacy
- por: American Kidney Fund
Kidney disease affects an estimated 1 in 7 Americans, and more than 550,000 are on dialysis. Kidney failure places enormous physical, emotional and financial burdens on individuals and costs the Medicare program over $50 billion annually.
The American Kidney Fund (AKF), the nonprofit with the greatest direct impact on patients' lives working on behalf of more than 35 million Americans with kidney disease, is working to raise awareness about APOL1-mediated kidney disease (AMKD), a spectrum of kidney disease associated with variants in the apolipoprotein L1 (APOL1) gene that is linked to an increased risk for kidney disease in people of western and central African descent.
It is estimated that 13% of Black Americans have two mutations of the APOL1 gene, and these individuals have a 1 in 5 chance of developing kidney disease. People with two of the APOL1 genetic mutations (or variants) are at a higher risk for developing genetic forms of rapidly progressing kidney disease.
Sign this petition and ask your Governor to:
The American Kidney Fund (AKF), the nonprofit with the greatest direct impact on patients' lives working on behalf of more than 35 million Americans with kidney disease, is working to raise awareness about APOL1-mediated kidney disease (AMKD), a spectrum of kidney disease associated with variants in the apolipoprotein L1 (APOL1) gene that is linked to an increased risk for kidney disease in people of western and central African descent.
It is estimated that 13% of Black Americans have two mutations of the APOL1 gene, and these individuals have a 1 in 5 chance of developing kidney disease. People with two of the APOL1 genetic mutations (or variants) are at a higher risk for developing genetic forms of rapidly progressing kidney disease.
Help us raise awareness in communities across the country about AMKD and how your genes can impact your kidney health.
Sign this petition and ask your Governor to:
- Designate the last Tuesday of each April as "APOL1-Mediated Kidney Disease (AMKD) Awareness Day"
- Encourage communities in the United States to become better informed about and aware of kidney disease and AMKD
- Encourage people from or with ancestry from Western and Central Africa to to talk to their health care provider about genetic testing for APOL 1 gene mutations.
Governor [Name]:
I am writing to respectfully request your support in:
This initiative aims to increase awareness about kidney disease, specifically the role of the APOL1 gene mutations, which disproportionately affect individuals of West and Central African descent, contributing to a higher incidence of kidney disease and kidney failure in these populations.
Raising Awareness About AMKD and Kidney Disease:
- Rising Incidence of Kidney Disease: Kidney disease remains a critical public health issue in the United States. According to the National Kidney Foundation, more than 37 million Americans suffer from chronic kidney disease, and millions are at risk of developing the condition. Early diagnosis and prevention can help delay or prevent progression to kidney failure.
- The Role of APOL1 in Kidney Disease: Recent studies have revealed that mutations in the APOL1 gene are strongly associated with a higher risk of kidney disease, particularly in people of African descent. Individuals carrying two copies of the APOL1 gene mutation are at greater risk of developing kidney disease, which often progresses to end-stage renal failure. Raising awareness of AMKD will provide at-risk populations with the tools to seek genetic testing, preventative care, and personalized treatment options.
- Community Engagement: Designating this day will allow for important conversations around kidney disease prevention and the genetic factors at play. It will also provide an opportunity to educate communities on the importance of early screening and the benefits of genetic testing. By creating greater awareness, we can empower individuals and healthcare providers to take preventive actions and reduce the burden of kidney disease.
I hope that you will consider this request as a step towards improving public health and reducing the impact of kidney disease in the United States.
Thank you for your time and consideration.
Sincerely,
[Your Name]
assinar petiçãoassinar petiçãoI am writing to respectfully request your support in:
- Designating the last Tuesday of each April as "APOL1-Mediated Kidney Disease (AMKD) Awareness Day"
- Encouraging communities in the United States to become better informed about and aware of kidney disease and AMKD
- Encouraging people from or with ancestry from Western and Central Africa to to talk to their health care provider about genetic testing for APOL 1 gene mutations.
This initiative aims to increase awareness about kidney disease, specifically the role of the APOL1 gene mutations, which disproportionately affect individuals of West and Central African descent, contributing to a higher incidence of kidney disease and kidney failure in these populations.
Raising Awareness About AMKD and Kidney Disease:
- Rising Incidence of Kidney Disease: Kidney disease remains a critical public health issue in the United States. According to the National Kidney Foundation, more than 37 million Americans suffer from chronic kidney disease, and millions are at risk of developing the condition. Early diagnosis and prevention can help delay or prevent progression to kidney failure.
- The Role of APOL1 in Kidney Disease: Recent studies have revealed that mutations in the APOL1 gene are strongly associated with a higher risk of kidney disease, particularly in people of African descent. Individuals carrying two copies of the APOL1 gene mutation are at greater risk of developing kidney disease, which often progresses to end-stage renal failure. Raising awareness of AMKD will provide at-risk populations with the tools to seek genetic testing, preventative care, and personalized treatment options.
- Community Engagement: Designating this day will allow for important conversations around kidney disease prevention and the genetic factors at play. It will also provide an opportunity to educate communities on the importance of early screening and the benefits of genetic testing. By creating greater awareness, we can empower individuals and healthcare providers to take preventive actions and reduce the burden of kidney disease.
I hope that you will consider this request as a step towards improving public health and reducing the impact of kidney disease in the United States.
Thank you for your time and consideration.
Sincerely,
[Your Name]
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