Sign Petition Asking Congress to Pass the ALS Better Care Act to Support Thousands of People Living with ALS!
ALS, or amyotrophic lateral sclerosis, is a progressive disease in which a person's brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. ALS has no cure, and the average life expectancy is less than five years post-diagnosis. More than 30,000 people in the United States are currently living with ALS.
People with ALS need care from multi-disciplinary clinics - and unfortunately many must wait several months to receive the care they so desperately need. ALS clinics provide multidisciplinary care in one visit with highly specialized health care professionals. Many also provide opportunities for people with ALS to participate in clinical trials designed to find treatments and cures.
Unfortunately, Medicare reimburses some but not all of the care provided at these clinics. This leaves ALS clinics with a budget shortfall which means long waits for people living with ALS and their families. ALS progresses very fast for most people and they need to begin their treatment plan right away to ensure they have access to clinical trials and quality care. People with ALS simply can't wait for months for care or the ability to be in a clinical trial.
The ALS Better Care Act (H.R. 5663) would help to reduce long wait times for people living with ALS to get the care they need by providing a $800 supplemental payment to ALS Clinics for each clinic visit in addition to their Medicare reimbursement.
ALS clinics are a lifeline for patients and their families. Sign the petition to urge Congress to pass the ALS Better Care Act, ensuring thousands impacted by ALS can get the care they need without long waits. Your support can make a significant impact!
ALS, or amyotrophic lateral sclerosis, is a progressive disease in which a person's brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. ALS has no cure, and the average life expectancy is less than five years post-diagnosis. More than 30,000 people in the United States are currently living with ALS.
People with ALS need care from multi-disciplinary clinics - and unfortunately many must wait several months to receive the care they so desperately need. ALS clinics provide multidisciplinary care in one visit with highly specialized health care professionals. Many also provide opportunities for people with ALS to participate in clinical trials designed to find treatments and cures.
Unfortunately, Medicare reimburses some but not all of the care provided at these clinics. This leaves ALS clinics with a budget shortfall which means long waits for people living with ALS and their families. ALS progresses very fast for most people and they need to begin their treatment plan right away to ensure they have access to clinical trials and quality care. People with ALS simply can't wait for months for care or the ability to be in a clinical trial.
The ALS Better Care Act (H.R. 5663) would help to reduce long wait times for people living with ALS to get the care they need by providing a $800 supplemental payment to ALS Clinics for each clinic visit in addition to their Medicare reimbursement.
ALS clinics are a lifeline for patients and their families. We urge you to pass the ALS Better Care Act, ensuring thousands impacted by ALS can get the care they need without long waits.
