Update #2vor 10 Jahren
The Fowler's finally got their face to face meeting with the CEO of Shire, which lasted minutes instead of the hour it was supposed to. CEO Flemming Ornskov said they're declining to sponsor Jack for expanded use and stated, "We don't deal with patients or families". Worst case scenario, the highest risk is death. In Jack's case, that risk is present in his everyday life. The last option the Fowler's have is public pressure, and they're asking for your help by signing and sharing this petition.
Update #1vor 10 Jahren
Thank you to everybody for the incredible support for Jack!
Shire has scheduled a meeting with the Fowlers!
DO THE RIGHT THING SHIRE!
Please share this petition again so we can get as many signatures as possible before the meeting!
Let's Help Save Jack!