This petition asks for ACTION on PA Senate Lyme Bill -
now SB#210 (was #1199 in 2010) regarding Lyme Disease.
You must be a PA resident - (if not, we must delete your signature) pls include
name, city, zip, email, and reason. PLEASE email LymeActionPA@gmail.com to be added to list for coordinated action and updates. 2/10//11 Update: See
http://www.lymeactionpa.com/ for updates and details. In January 2011, the bill was reintroduced -we have a new 2 year session in the Senate - bill has a new #: SB#210 -- in your correspondence with your Senators - use this number. We are meeting on concerns on the bill with Depts in Harrisburg. Things continue to move forward on the bill. We will let you know when it will be considered. Plans for a MARCH on Harrisburg spotlighting the YOUTH, YOUNG ADULTS and CHILDREN is in the works. Please email us that you're in and check facebook-LymeActionPA -- more information will follow. Find anyone you know, families, young adults with Lyme and let them know this is happening in May 2011 - it is OUTRAGEOUS what is happening to our children with these diseases. Please write your senator asking them to support this bill, and cc:
dwhite@pasen.gov, and
sgreenleaf@pasen.gov, AND
mailto:montcolyme@aol.com .
Lastly - if you want to do more, or have networks you can leverage, veterinarians, health care workers, social/mentalhealth workers -- reach out to them, ask them to support this bill and help to get it passed - WE NEED YOU - email LymeActionPA@gmail.com. Thank you!!We the undersigned, are writing to you to ask you to take action on Senate Bill #210 (#1199 in 2010), Lyme and Related Tick-Borne Disease Education, Prevention and Treatment Act. This bill is very important in PA - many are being devastated by these diseases (see separate listing of our personal stories). In any disease with uncertainty and evolving science, physician clinical judgment is critical, and complex illnesses like this require individualized solutions. There are 2 standards of care, and patients should have informed choice. This bill is absolutely necessary to address current issues in the prevention, education, treatment and access to skilled care for these diseases. Thank you for reading our signatures and stories that are representative of many more in Pennsylvania.
We are specifically asking for consideration of this bill. This committee needs to know that this bill is very important to us, and necessary to the public of PA. These diseases have been growing astronomically; PA has been #1, 2 or 3 in the past in new cases, and the seriousness of their impact is growing as well. The stories of those affected by these diseases, many of them children, are heartbreaking and cannot be ignored any longer. Last year, scientists gene sequenced 13 substrains of Lyme and found that while some only create a rash and slight illness, easy to cure, many strains cause a very serious and debilitating disease. Science has long over-turned the dated notions that underpin the narrow, acute understanding of these diseases reflected in the practices of the majority of medical practitioners today. Restore the rights of patients to full information about these diseases and the 2 standards of care, our rights are being violated and childrens lives are at stake.
Thank you for your representation of our concerns, and support of this important legislation. And our great thanks to Senator Greenleaf who has taken the lead in rectifying this horrendous situation with this bill.
